About Me

I am a single mom of three amazing boys!  All three of my sons entered my family through adoption.  All three of my boys have developmental disabilities. My oldest son, Matthew has been diagnosed with Fetal Alcohol Syndrome and Bipolar Disorder. David, my middle son, has a genetic condition, he has a duplication on his 15th chromosome which leads to autism like symptoms, seizures and learning challenges. My youngest son, Jacob has learning disabilities. Each of my children bring unique challengs to our family and also bring their own personality and joys to our everyday life!

Saturday, March 6, 2010

punishing asthmatics for not breathing

that sounds logical doesnt it? How about punishing a diabetic for not managing their blood sugar appropriately? Ok, ready, how about punishing a child with epilepsy for acting impulsively and not responding during a seizure?

Yep, that is what is going on with D at his school. Poor little man lost "treasure" 2 days last week because he was being impulsive and not listening to the teacher. Now I could care less about the treasure itself. What I care about is the fact that he knows he didn't earn treasure but has no idea why. He has no control over his impulsivity these days, and is a maniacal ball of energy....or to say it another way, he is the D that lived with me for 3 years BEFORE seizure meds.

The babysitter, who is has done amazing with for months now, is struggling and cannot get him to respond, he is a maniac on the bus, and now he is also "not listening" at school. Do we think the teacher might want to tell his mom? Do we think we might want to give mom information so she can touch base with the doctor? NO, of course not, let's just take away the boy's treasure and see if he does better.

GRRRRRRRRRRRRRRRRRRRRRRRRRRRR I truly wonder why life ALWAYS has to be hard....can the Bloom boys please catch a break?

1 comment:

  1. I'm sorry to hear that D lost his treasure when it was really out of his control. You really know how to put things in perspective. It's too bad that his teacher does not get it. I just wanted to tell you that you are doing an amazing job mom!