About Me

I am a single mom of three amazing boys!  All three of my sons entered my family through adoption.  All three of my boys have developmental disabilities. My oldest son, Matthew has been diagnosed with Fetal Alcohol Syndrome and Bipolar Disorder. David, my middle son, has a genetic condition, he has a duplication on his 15th chromosome which leads to autism like symptoms, seizures and learning challenges. My youngest son, Jacob has learning disabilities. Each of my children bring unique challengs to our family and also bring their own personality and joys to our everyday life!

Wednesday, September 22, 2010

my head is spinning

I think there is so much going on, that the only way to do this is boy by boy......

Let's start with the easy one! Jacob is great! he is LOVING his new classroom, totally in love with his teachers, his friends and basically school in general. Cannot get up and out of the house early enough and like a sponge he is just soaking in everything anyone says to him.

David the ups and downs of this week are enough to make me crazy. In the last post he had started stuttering for no reason at all... Well as quickly as the stutter began, the stutter went away. A week ago Wednesday he had a seizure on the bus, was lethargic and pretty non responsive on the bus ride home, got off the bus and was with my mom for 2 hours and was absolutely amazing. Super well behaved, chatted about everything and not one stutter.

He continued like this for almost a week- he was a totally different child.
On Rosh Hashannah we had gone to services, and he had his teacher aide with him and she struggled with him over everything..... Fast forward a week later, when the stutter was gone, it was Yom Kippur and the aide said he was incredible. They looked at books, colored did a variety of activities, all was wonderful.

He was out of control the first day the new sitter was here, really put the sitter to the test, and then the next time the sitter came, after the stutter went away, he was amazing, very easy to care for, very chatty, all was good.

Soccer practice the week he had the stutter he did almost nothing- he kept taking the balls and throwing them into the woods, just could not really do anything, this past week at soccer practice, he did drills for an hour....now certainly, I am not saying that he did drills like everyother 1st grader, and I am not saying he became a soccer star, but if you didn't know he was a child with developmental issues, you might not have guessed how much he struggles. He held it together for an hour, and was proud of himself and did an amazing job/

Today, I called home to check on him and he apparently had been drooling and sleeping on the bus. David doesn't drool. David doesn't sleep on the bus unless something is wrong. The highly impulsive little boy is back. The david who truly can't focus or attend, who cannot follow what is being said but desperately wants to please you...the look in his eye tonight was again one of sadness and exhaustion.....I hate that look...I konw it can go away and I trust that it will, but man was it a great week, the week without the stutter!

For matthew, life is basically just getting back into the routine that is school. This morning he again was able to open the lock box- I thought that he had discovered the code, but he swore to me he hadn't but when i came downstairs the cheezits he had so desperately wanted were open, and the lock box was open as well.

In my frustration, I redid the code, only to spend the day trying to figure out what I had entered as the code- I wasted a total hour of my life tonight determined to figure out what code I had entered....thankfully I figured it out, but seroiusly, why can he crack the code in moments, and I am mentally not sharp enough to remember the 6 digit code I entered?

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